Join Us This Summer for the Mercy Children's Hospital Beckwith Wiedemann Syndrome Conference!
Kids Plastic Surgery and Mercy Children's Hospital invite you to attend a conference designed to provide individuals with Beckwith-Wiedemann Syndrome (BWS) and their families up-to-date information about the possible aspects of BWS and their management. The conference will take place August 1-3, and will consist of lectures by specialists with BWS expertise in the fields of cardiology, child psychology, genetics, nursing, oncology, orthodontics, orthopedics, plastic surgery, pulmonology, and speech therapy. There will be an opportunity for clinical evaluations by plastic surgery, speech therapy and orthodontics for individuals who have already had tongue reduction and those who may be considering tongue reduction.
The Beckwith-Wiedemann Children’s Foundation is a co-sponsor of this event and will provide opportunities for BWS individuals and their families to network.
Please join us in celebrating Dr. Jeffrey Marsh’s 35 years of working with the BWS community and take the opportunity to meet Dr. Earl Gage, who will be taking over Dr. Marsh’s practice on 1 July 2015 when Dr. Marsh will retire.
To learn more about registering for our conference, please visit our registration page. We look forward to seeing you in August!
Other Upcoming Events in Our Craniofacial Community
Cleft Palate Foundation Connections Conference
Saturday, March 22, 2014 - 8:30am to 5:00pm - Indianapolis, IN Downtown Marriott
This one-day conference is designed for individuals and families affected by cleft lip/palate and other craniofacial conditions. It features a keynote speaker (David Roches), panel discussions, pizza party, roundtable workshops, kids' yoga, therapy dogs, experts Q & A, and storyteller (Marlena Blavin). More information is available on the Cleft Palate Foundation's website: www.cleftline.org.
Mercy Children's Hospital 10th annual Cleft Lip/Palate Care Conference
Friday, April 25, 2014 - 7:30am to 4:00pm Mercy Children's Hospital von Gontard Conference Center
This one-day conference is designed for health care professionals involved in the care of individuals with cleft lip/palate. This program will be of specific benefit for Speech-Language Pathology professionals as well as those in the disciplines of Nursing (delivery room, nursery, public health, home health, in-hospital pediatrics), Pediatrics and Plastic Surgery. Our keynote speaker, Kathy L. Chapman, PhD, CCC-SLP, will be presenting on special considerations in the assessment and management of young children with cleft palate and treatment approaches for communication problems of toddlers and preschoolers with cleft palate. The Mercy Children's Hospital Cleft Lip/Palate Team will be presenting interdisciplinary case presentations. More information is available on the Mercy Children's Hospital website: www.mercy.net/CME-Classes.
St. Louis Families for the Smile Train 7th annual Trivia Night
Saturday, April 26, 2014 - 7:00pm (doors open at 6:00pm) - Incarnate Word Academy in Normandy, MO
This event is designed for adults (8 people to a table, $140 per table). The trivia night is hosted by families affected by cleft lip and palate and the proceeds go to the Smile Train, the world's leading cleft charity. The night also offers 50/50 raffles, basket raffles, and silent auction. Beer, soda and snacks are included. You may bring your own food and drinks. For more information, please contact Carolyn at 314-831-2058 or email Mary Ann at firstname.lastname@example.org.
Children's Craniofacial Association 24th annual Cher's Family Retreat
Thursday, June 26, 2014-Sunday, June 29, 2014 - St. Louis Union Station Hotel by Doubletree
This event is designed for individuals affected by a facial difference, their siblings and parents. The weekend begins with a one-day craniofacial symposium followed by visiting local attractions. The unique weekend retreat allows the attendees to share ideas, problems and solutions and make long-lasting friendships. The informal format of this weekend allows time to build new relationships and bonds of understanding and caring, which will lend support through both difficult and good times in the future. For more information, please view the Children's Craniofacial website: http://www.ccakids.com/family-retreats.html.